Brentwood MND fundraiser receives Ultimate Pride of Essex award

Award recognizes Alex’s mission to help people with NDD following his own diagnosis

Submitted by Joanne Macklin

Former GB decathlete Alex Gibson has been recognized for his work in providing memorable experiences for people living with MND.

Alex, from Brentwood, Essex, received the 2021 Ultimate Pride of Essex award for starting the MND Challenge charity following his diagnosis of motor neuron disease at the age of 39.

The host of the Pride of Essex Awards, Essex Deputy Lieutenant – Stuart Rawlins, said: “Alex is an incredibly worthy recipient of this year’s 2021 Ultimate Pride of Essex Award. He has twice broken the Guinness World Record for covering the 128 miles of the Thames in a pedal boat. He hiked the Outer Hebrides, climbed the Three Peaks, and covered the 480 miles in between. He completed a double marathon in 25 hours and rappelled down Stratford orbit. He also averages 19,000 steps a day despite having difficulty walking. “

In just over two years, the association has raised over £ 390,000 and donated £ 100,000 to the MND association.

Motor neuron disease is a rapidly progressive neurological disease that affects the brain and spinal cord. Shortly after Alex’s diagnosis in 2018, a charity rugby match was held between two of Alex’s former clubs, Brentwood RFC and Barking RFC in October 2018, with the sole purpose of raising funds for Alex and his family.

Uncomfortable being the recipient of donations, Alex set out to found the charity to help others affected by the disease.

While motor neuron disease will eventually cause the body to fail, the mind can stay sharp. Challenge MND is therefore dedicated to providing challenges and memorable events to people affected by the disease.

The charity also campaigns to raise awareness about the disease, and almost all of its work is funded through voluntary donations and fundraising activities.

Alex, said: “It is an honor to have won this award and to receive such recognition for what I have accomplished both personally and so far with Challenging MND.

“I have always done everything I can to use my own diagnosis of MND as an opportunity to help other people living with the disease. Each challenge I participate in pushes me to raise more money and inspire more. people within the MND community.

“Awards like this not only recognize what I have accomplished, but also help to raise awareness of MND and what we do as a charity so that we can help even more people living with the disease. create lasting memories with loved ones. “

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Julio V. Miller